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Alzheimer's

Compiled by Julie Pohlman, July 2012

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Dementia is the loss of brain function affecting memory, thinking, and behavior. Occurring predominantly in older people, Alzheimer's disease is an incurable, progressive form of dementia. With the aging of the Baby Boomer generation, the proportion of those afflicted could be the largest in history and there is an increased spotlight on addressing their needs. This Tap the Power focuses on resources available to understand the policy issues related to treatment, funding, and programs that address the direct costs of caring for Alzheimer's and dementia patients.

Alzheimer's Association. "2012 Alzheimer's Disease Facts and Figures." Alzheimer's and Dementia 8, no. 2 (2012): 1-67. www.alz.org/downloads/Facts_Figures_2012.pdf.

Baker, Beth. "Treating Alzheimer's: Is the Nation Prepared for Millions of New Cases?" CQ Researcher 21, no. 9 (2011): 193-215. A basic overview on the topic of Alzheimer's which describes the issues, background, and outlook and identifies areas for further research. (614.4/C761i)

Dusenberry, Mary Branham. "Aid For the Silver Wave: States Find Ways to Help Alzheimer's Patients, Caregivers." State News, June/July 2007. www.csg.org/knowledgecenter/docs/sn0706AidfortheSilverWave.pdf. Overview of what several states are doing to combat the growing needs of Alzheimer's patients and caregivers. (029/St2b/2007/v.50/no.6)

Fox-Grage, Wendy. Alzheimer's Disease and Related Dementias: A Legislative Guide. Denver, CO: National Conference of State Legislatures, 2000. This book "... is to help state policymakers understand the challenges of Alzheimer's and to offer practical ideas about how they can address those challenges." An audio tape of a panel that presented at a 2000 NCSL annual health care conference is included. (614.4/N21/pt.1&pt.2)

Illinois Department of Public Health. Alzheimer's Disease and Other Related Dementia State Plan: Senate Joint Resolution 43, Report to the Governor and General Assembly. Springfield, IL: Illinois Department of Public Health, 2009. www.alz.org/national/documents/illinois_state_plan.pdf.

Kehoe, Cathy. Changing Our Minds: From Parenting to Caregiving - A Mentoring Tool for Alzheimer's Caregivers: Training Manual. Madison, WI: Wisconsin Department of Health and Family Services, Division of Disability and Elder Services, Bureau of Aging and Long Term Care Resources, 2004. http://worldcat.org/archiveobjects/0000019614/viewonline.

Miller, Debra. Alzheimer's Disease and Caregiving. Lexington, KY: Council of State Governments, 2011. http://knowledgecenter.csg.org/drupal/system/files/Alzheimers.pdf. "Medicaid is the largest single item in many state budgets, and caring for people with Alzheimer's is a significant driver of those costs, particularly because of the high numbers of people with the disease who end up in nursing homes." (614.4/C83e)

Minnesota Board on Aging. Preparing Minnesota for Alzheimer's: The Budgetary, Social and Personal Impacts. Saint Paul, MN: Minnesota Board on Aging, 2011. www.alz.org/national/documents/mn_state_plan.pdf.

National Alzheimer's Project Act of 2011. Pub. L. No. 111-375. 124 Stat. 4100 (2011) www.gpo.gov/fdsys/pkg/PLAW-111publ375/pdf/PLAW-111publ375.pdf.

National Institute on Aging, and Alzheimer's Disease Education and Referral Center (National Institute on Aging). 2010 Alzheimer's Disease Progress Report: A Deeper Understanding. Bethesda, MD: U.S. Department of Health and Human Services, Public Health Service, National Institutes of Health, National Institute on Aging, 2010. June 27, 2012. www.nia.nih.gov/alzheimers/publication/2010-alzheimers-disease-progress-report-deeper-understanding. This report focuses on the progress of scientists working toward treatments and the prevention of Alzheimer's.

Older Americans Act Amendments of 2006. Pub. L. No. 109-365. 120 Stat. 2522 (2006). www.gpo.gov/fdsys/pkg/PLAW-109publ365/pdf/PLAW-109publ365.pdf.

Prince, Martin, Renata Bryce, and Cleusa Ferri. World Alzheimer's Report 2011: The Benefits of Early Diagnosis and Intervention Executive Summary. London: Alzheimer's Disease International, 2011. www.alz.org/documents_custom/final_world_alz_report_2011_summary.pdf. Review of evidence worldwide related to the early diagnosis and intervention of Alzheimer's.

Schmidlkofer, James. Wisconsin Plan for Older People 2010-12. Madison, WI: Wisconsin Department of Health Services, Division of Long Term Care, Bureau of Aging and Disability Resources, 2009. www.dhs.wisconsin.gov/aging/Publications/Final%20State%20Plan%2007-24-09.pdf. "Following the guidelines set forth by the Federal Administration on aging, this multi-year plan represents a `legal contract' between the state and the federal government for carrying out the programs authorized under the Older Americans Act. Like its counterpart at the federal level, the state agency is responsible for serving as an effective and visible advocate for the elderly." (HSS/ComS/A/f)

Wisconsin Alzheimer's Information and Training Center Advisory Council. State of Wisconsin Alzheimer's Initiative: Summary Report. Madison, WI: Wisconsin Alzheimer's Information and Training Center Advisory Council, 1989. This is a summary report of the services that were underwritten with funds from 1985 Wisconsin Act 29 which includes a table of funds and Alzheimer's patients by county. (HSS/ComS/A/s)

Wisconsin Task Force on Alzheimer's Disease and Other Irreversible Dementias. Final Report of the Wisconsin Task Force on Alzheimer's Disease and Other Irreversible Dementias. Madison, WI: Wisconsin Department of Health and Social Services, Division of Community Services, Bureau of Aging and Disability Resources, 1987. "The Wisconsin Task Force ... met in 1984 and 1985 to study a variety of problems related to Alzheimer's disease in the state and suggest solutions or strategies for solving some of these problems."(HSS/ComS/A/f)

Related Web Sites

Alzheimer's Association. "Alzheimer's and Dementia Help Center." June 25, 2012. www.alz.org.

Alzheimer's and Dementia Alliance of Wisconsin. June 25, 2012.
www.alzwisc.org/index.html.

Centers for Disease Control and Prevention. National Center for Health Statistics. "Alzheimer's Disease." June 27, 2012. www.cdc.gov/nchs/fastats/alzheimr.htm. Data provided on the health care use and mortality of those with Alzheimer's disease.

Council of State Governments. Knowledge Center. " Aging and Alzheimer's Disease: Emerging Issues and Policy Solutions." June 27, 2012. http://knowledgecenter.csg.org/drupal/content/aging-and-alzheimer%E2%80%99s-disease-emerging-issues-and-policy-solutions. The October 19, 2011, CSG conference webpage providing links to many of the presentations.

National Institute on Aging. "Alzheimer's Disease Education and Referral Center." June 25, 2012.
www.nia.nih.gov/alzheimers.

U.S. Department of Health and Human Services. "Alzheimers.gov: For the People Helping People with Alzheimer's." June 27, 2012. www.alzheimers.gov. Official U.S. government Web site.

U.S. Department of Health and Human Services. "National Alzheimer's Project Act." Last modified June 22, 2012. http://aspe.hhs.gov/daltcp/napa. The National Alzheimer's Project Act calls for a national plan for Alzheimer's disease and related dementias. This site provides access to the reports, recommendations, and meetings of the Advisory Council on Alzheimer's Research, Care, and Services which was established to inform the creation of the national plan.

University of Wisconsin School of Medicine and Public Health. "Wisconsin Alzheimer's Institute." June 26, 2012. www.wai.wisc.edu. The WAI provides the education and outreach core of the Alzheimer's Disease Research Center. The site provides access to current WAI research, educational courses related to Alzheimer's work, as well as further resources for health care providers, researchers, and caregivers.

Wisconsin Department of Health Services. "Alzheimer's Disease and Dementia Resources." Last modified November 16, 2011. www.dhs.wisconsin.gov/aging/Genage/ALZFCGSP.HTM. Site contains resource materials and publications, as well as information about DHS programs and services.

Wisconsin Legislative Council. "Special Committee on Legal Interventions for Persons with Alzheimer's Disease and Related Dementias." June 29, 2012. http://legis.wisconsin.gov/lc/committees/study/2012/ALZ/index.html.

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